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Adding Tomorrows Every Day Cystic fibrosis is a genetic, life-threatening disease that causes mucus to build up and clog some of the organs in the body, particularly the lungs. When mucus clogs the lungs, it can make breathing very difficult. The thick mucus also causes bacteria to get stuck in the airways, which causes inflammation and infections that lead to lung damage. Currently the median age of survival for CF patients is 37 and there is no cure. In recent years, doctors in Australia realized that cystic fibrosis patients who surfed had significantly healthier lungs than non-surfing CF patients. They found that the inhalation of saltwater mist hydrates the lining of the lungs and actually assists in the elimination of bacteria-laden mucus. As a result of this discovery, a hypertonic saline solution was developed to mimic a “surf session” for CF patients to use on a daily basis. We all know that surfing is great for the body and soul, but in this case, it actually helps fight the disabling effects of cystic The goal of the Pipeline To A Cure Gala is to increase awareness and funding for the Cystic Fibrosis Foundation by rallying the surfing and action sports world. Since 1955 the Cystic Fibrosis Foundation has worked to assure the development of the means to cure and control CF and to improve the quality of life for those born with the disease.
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Event Chairs: Judy Burlingham, Todd Elder, Jerry Hennessy, Bob Mayer, Paul Motenko ©2008-2012 Pipeline To A Cure. All rights reserved / Todos los derechos reservados. Site design: MACWA.COM Cystic Fibrosis Foundation • Southern California Chapter (Orange County) • 2150 S. Towne Centre Place, Suite 120 • Anaheim, CA 92806 |
Because of risks to people with cystic fibrosis (CF), individuals with a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) complex shall not attend Pipeline To A Cure. This is because B. cepacia can be passed between individuals who have CF through close proximity. B. cepacia infection in a person with CF can cause serious respiratory illness and, in some patients, may lead to death. Despite this policy, there might still be some individuals with B. cepacia in attendance. B. cepacia is not a risk for otherwise healthy individuals. For alternate ways to participate and for more information about this policy, please contact the CF Foundation at (800) FIGHT-CF or visit www.cff.org. Consult your CF care center physician with medical questions. |