4th Annual Gala: August 6, 2011
Hyatt Regency Resort and Spa
Huntington Beach CA


Info: (714) 938-1393
or (800) CF-CURE-1
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AUGUST 6, 2011
Hyatt Regency
Huntington Beach
Resort & Spa

MEDIA CENTER


Honorary Co-Chairs Laird Hamilton and David Kalama with former CF Ambassador Emily Haager




In this video, former CF Ambassador Emily Haager highlights the amazing therapeutic benefit that surfing has for those with this disease.

 

Adding Tomorrows Every Day

The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. The Foundation is the leading organization in the United States devoted to cystic fibrosis. It has more than 80 chapters and branch offices nationwide and funds and accredits 115 CF care centers across the country, including 94 adult care programs, which provide patients and families with vital treatment and other CF resources. In addition, 54 affiliate programs provide multi-disciplinary care for CF with Foundation support.


The Foundation is one of the most efficient organizations of its kind. In 2009, nearly 90% of every dollar of revenue raised was available for investment in CF research, care and education programs. The National Institutes of Health and many prominent publications, including Forbes and USA Today, have heralded our innovative business model, which fuels drug discovery and development programs.


The Cystic Fibrosis Foundation Is … Hope in Action.

Until we conquer this disease, our team will work tirelessly to extend and enhance life for those with cystic fibrosis by functioning as:

  • Scientific pioneers, blazing new trails in CF research
  • Fund-raisers, securing the money needed to support our effort
  • Advocates, keeping CF a top priority in government, industry and research
  • Investors, funding drug discovery and development
  • Caregivers, linking patients and families to specialized CF care
  • Family, offering support, information and resources.


The Cystic Fibrosis Foundation Is … Building on Success

  • When the Foundation was established in 1955, children with CF were not expected to live long enough to attend elementary school. Due in large part to the Foundation's aggressive investments in innovative research and comprehensive care, the predicted median survival age for people with this disease is now 37 years.
  • In 1989, CF Foundation-supported scientists discovered the defective gene that causes cystic fibrosis—a monumental breakthrough on the road to a cure.
  • The Foundation has played an integral role in the development and FDA approval of four therapies that are now a routine part of treatment regimens for many with CF. The Foundation is actively supporting nearly 30 potential new treatments currently in development—that's more than in the entire history of the disease. Our challenge is to find enough patients to join clinical trials to keep the research moving forward.


The Cystic Fibrosis Foundation Is … Still Making Progress

We are proud of our achievements. But, we still have much to do. Learn more about what the Foundation does to fight cystic fibrosis and how you can get involved.

 

 
 
Because of risks to people with cystic fibrosis (CF), individuals with a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) complex shall not attend Pipeline To A Cure. This is because B. cepacia can be passed between individuals who have CF through close proximity. B. cepacia infection in a person with CF can cause serious respiratory illness and, in some patients, may lead to death. Despite this policy, there might still be some individuals with B. cepacia in attendance. B. cepacia is not a risk for otherwise healthy individuals. For alternate ways to participate and for more information about this policy, please contact the CF Foundation at (800) FIGHT-CF or visit www.cff.org. Consult your CF care center physician with medical questions.